Multiple sclerosis: Consciousness is the first step

June 15, 2022 | 14:10

Multiple sclerosis: Consciousness is the first step

Sumaya Caldas Afif *

Diseases that affect 2 to 2.5 million people worldwide, cause pain, malaise, cognitive loss, physical limitation, and the first symptoms can be overlooked need to be widely known to society. there is. Therefore, it is important to discuss multiple sclerosis (MS) and bring this discussion to all areas of society. The global community of sick people brings positive messages to patients, friends and family, shares stories, raises public awareness and recognizes the neurological problems that affect others. We will promote awareness-raising behavior throughout the year with the aim of making people feel better.

MS is a chronic autoimmune disease of the central nervous system (CNS) that damages cells in the brain and spinal cord. Symptoms include extreme fatigue, depression, weakness, joint pain, and bowel and bladder dysfunction. In most cases, this condition has a significant impact on the patient’s quality of life from the onset of the first symptoms, causing outbreaks that exacerbate the disorder over the years.

“In Brazil,
Prevalence is close to 15
Cases per 100,000 inhabitants “

Given this situation, awareness, information and surveillance need to be strengthened to ensure early diagnosis and interdisciplinary treatment. Global awareness of MS mobilizes social, medical professionals, and especially public or private health care professionals on the importance of timely diagnosis, innovative and disease-correcting treatments, and people’s rehabilitation. Most important to do. Most often, they are young and in the productive stage of life. Also, the involvement of patients, families, caregivers and patient groups in public consultation is a better public health policy to verify social performance in building the most appropriate scenarios and ensure full access to services. Actively participate in the construction.

Multiple sclerosis is a disease that incapacitates an individual. According to a natural history study, about 80% of people with multiple sclerosis face difficulty walking, and 15 years after diagnosis, 40% need walking aids and 25% need a wheelchair. It is estimated. In addition to physical limitations, the effects of MS have a significant impact on the patient’s mental health and increase the prevalence of comorbidities such as depression, anxiety, cognitive dysfunction, and sexual dysfunction. Early and influential treatment is important. Because each patient requires individualized treatment, there are more options to provide targeted therapies that can reduce outbreaks, minimize the accumulation of disability, and improve the patient’s quality of life. Will be.

To support the decision-making process for incorporating more treatments for MS, the National Supplementary Medical Institution (ANS), the regulator of the private health insurance market, launched public consultations on June 1. Listen to civil society opinions about including treatments for the treatment of patients with multiple sclerosis. Participation of experts, patients and the general public by 20/6 will contribute to organ decisions. If you would like to participate and follow up, please check the ANS website for more information.

* Government Relations and Advocacy Manager of Brazil Multiple Sclerosis Association (ABEM)

Note: The signed article does not necessarily reproduce the opinion of the newspaper Diário do Aço.

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